Aarcflick

Greetings again from the darkness. Epidermolysis bullosa (EB) has been dubbed "the worst disease you'll ever hear about." After watching this documentary by Matt Finlin, I can safely say that EB is now one of the worst diseases I've ever heard of. Watching someone suffer is torture, and when those affected are young and simply got the worst genetic hand, the difficulty is even greater. This painful disease causes blisters on the skin and is usually visible to everyone, requiring delicate and frequent bandaging to minimize the damage. Rock star Eddie Vedder and his wife Jill founded the EB Research Partnership, and the documentary features a couple of mostly acoustic concerts that Eddie performed in 2023 at Benaroya Hall in Seattle to raise funds and awareness for the disease. Vedder is best known for his work (since 1990) with Pearl Jam (originally Mookie Blaylock), an iconic Seattle grunge rock band.  Director: Matt Finlin Writer: Karen Barzilay Stars: Eddie Vedder T...